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17-09-2001, 06:43pm
Hi Greg64
I am very sorry to hear that your little girl has this rare disease and that you have already suffered the loss of your little boy.
I hope and pray that somehow you and your family can find the strength to carry on and I wish you a more positive future.
I have a close friend who lives in Queensland whose 3 children were the first in Australia to have been diagnosed with a very rare disease which unfortunately has already taken the life of his youngest son at the age of 16, totally crippled his middle daughter who now only has a relatively short time left to live but has not materialised into anything more than a dark spot on his eldest daughters neck.
Somehow he and his wife have managed to find the strength to live through that horrific trauma with lots of support from friends and the community and I hope you can and will do the same.
As a parent I can imagine what you must be experiencing and my heartfelt sympathies goes out to you and your family.
If you would like to contact my friend and his wife to share some of your feelings I would be very happy to make the contact just send me a private email at aramat@dingoblue.net.au
I am sure the contact would be very beneficial.
Take good care.
Cheers
Les
I am very sorry to hear that your little girl has this rare disease and that you have already suffered the loss of your little boy.
I hope and pray that somehow you and your family can find the strength to carry on and I wish you a more positive future.
I have a close friend who lives in Queensland whose 3 children were the first in Australia to have been diagnosed with a very rare disease which unfortunately has already taken the life of his youngest son at the age of 16, totally crippled his middle daughter who now only has a relatively short time left to live but has not materialised into anything more than a dark spot on his eldest daughters neck.
Somehow he and his wife have managed to find the strength to live through that horrific trauma with lots of support from friends and the community and I hope you can and will do the same.
As a parent I can imagine what you must be experiencing and my heartfelt sympathies goes out to you and your family.
If you would like to contact my friend and his wife to share some of your feelings I would be very happy to make the contact just send me a private email at aramat@dingoblue.net.au
I am sure the contact would be very beneficial.
Take good care.
Cheers
Les